I just read this article about a dad dealing with having a disabled son with an extremely rare genetic disorder… And this sort of thing bothers me so much now.  Or I should say effects me.

Any news article or story about a sick baby, hurting child, or suffering son cuts me right to the bone.  A couple of times I’ve had to snatch Nathanael out of his comfy crib late at night and just hold him for a little while.

It’s important to be reminded that something as simple as having a healthy baby is a gift, a blessing.

There are times when I miss being able to just go somewhere without having to complete a checklist of baby items necessary to leave the house (diapers: check… formula: check… Sophie the Giraffe: check).  Or being able to have a conversation without having to prevent a squirmy kid from grabbing things off the coffee table.

But I’m so grateful.  So achingly grateful for his ten fingers and ten toes and his perfect little nose and two Chiclets teeth and slightly-crossed eyes and perfectly spherical head.


One comment on “Grateful

  1. Doc said Aaven might have a defect because of spots on an ultrasound. Trisomy 21 I think. Most babies don’t live past 2 years. Next ultrasound she was like “what spots? Everything’s fine.”

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s